ANA Discussion Forum

Posted in Patient Stories, Random Stuff with tags , , , , , , on June 28, 2010 by SGR

Have you been to the ANA discussion forum? I know that a lot of folks that find my little blog are new to the whole “AN experience,” and looking for some information and answers.

For those that are in this boat, you should visit the ANA Discussion Forum. It is filled with GREAT people (many of whom have contributed their stories here) and a tremendous support network.

I honestly don’t know if I could have gone through all that I did without those folks over there. There is a link on my page if you’d like to check it out.

Right over there ——————————>      =)

Huh?

Posted in Random Stuff with tags , , , , , , , on May 28, 2010 by SGR

Say what? Huh? one more time? I’m sorry? 

Sometimes I feel like that’s all I say anymore. It’s been almost 6 years since I was diagnosed with a brain tumor and had my first brain surgery, thus, 6 years since I’ve heard a single sound from my left ear. I suppose it’s a small price to pay considering that a large brain tumor was removed from my brain, but sometimes I just grow so absolutely frustrated with my inability to hear fully. I live my life looking around frantically wondering if anyone is trying to talk to me. No matter where a sound comes from, it always feels like it’s coming from my right (good ear). I fear what the future brings when nature takes it course and the hearing in my “good” ear deteriorates.

 I try to maintain a positive attitude and count my blessings, and I fully understand that so many people have much larger challenges, but I’m allowed to vent once in awhile, right? Right? Did you say right? Huh?

Phyl’s CyberKnife Testimonial

Posted in Patient Stories with tags , , , on March 11, 2010 by SGR

Want to share YOUR story?

Posted in Random Stuff with tags , , , , on March 3, 2010 by SGR

Sharing your experience may help others in the same boat. Care to share your experience? Just send me your story by clicking HERE, and I’ll post it ASAP.

Thanks!
Scott

Scott Ryan

Posted in Patient Stories with tags , , , , , , on June 9, 2009 by SGR
  
 

April 2007

April 2007

  Scott Ryan
 

Canton, Michigan  

 

Diagnosed 3.5 cm AN in August 2004 at age 28

 Microsurgery #1 (Retrosigmoid Approach)

 October 7, 2004

 

Microsurgery #2 (Translabyrinthine Approach)

February 1, 2006

 

Gamma Knife Radiation

July 17, 2007

 

 

“YOU HAVE A BRAIN TUMOR.” My heart started racing. I could feel myself growing faint. I leaned my back against the wall of the small exam room and slid down to the floor. Dr. P continued, “IT’S LARGE AND IN A BAD SPOT, COMPRESSING YOUR BRAIN STEM, WE NEED TO SCHEDULE SURGERY TO GET THAT OUT OF THERE.” I closed my eyes and tried to regain some sense of composure. I was numb.

  Continue reading

And so I conclude … life isn’t fair.

Posted in Random Stuff with tags on May 29, 2009 by SGR

As I go through life, I continue to see bad things happen to good people. Someone please explain it to me.

BAHA Simulation

Posted in Random Stuff with tags , , , , , on March 31, 2009 by SGR

Last week I went for a follow up appointment with my Otologist and was introduced to the BAHA (Bone Anchored Hearing Aid) implant. Because I’m completely deaf in my left ear, and my hearing is great in my right ear, I am a “candidate” for BAHA. They allowed me to do a BAHA simulation in the office so that I could see what it’s like. The put on some headphone-type things, but one side was on my forehead and the other was on on the bone behind my bad ear. I plugged my good ear with my finger and as the Dr. whispered in my bad ear, I could hear as clear is day. It was quite amazing and almost brought a tear to my eye. Even though it was simply transporting sound to my other ear, it was the first time since 2004 that I could hear someone whispering on my left side. Amazing stuff.

Maybe this makes me shallow, but despite this amazing technology I’m probably going to stay away from the implant. First and foremost, after 2 brain surgeries, any thought of elective surgery, as small as it may be, makes me shiver. Second, and this sounds bad, but I don’t like the idea of a small implant sticking out of my head. Maybe it’s a lack of confidence or insecurity, but I already feel that people stare and judge me based on my facial weakness, eye issues, etc. Having a small implant sticking out of my head would make me even more uncomfortable in my own skin.

I’d be interested to hear from anyone that has BAHA. It truely does seem amazing.

Posted in Random Stuff on March 27, 2009 by SGR

Tweeting from the operating room during …

Posted in Random Stuff with tags , , on March 26, 2009 by SGR

Tweeting from the operating room during brain surgery?
http://abcnews.go.com/GMA/Weekend/story?id=7140272&page=1

I was introduced to the BAHA implant at …

Posted in Random Stuff with tags , , on March 26, 2009 by SGR

I was introduced to the BAHA implant at my follow up appointment yesterday. Anyone have any experience with it?